امروز : چهارشنبه 28 آذر ماه 1397
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پایگاه آموزشی مقابله با مصدومیت - تروما

امکان سنجی و کیفیت داده‌های ثبت ملی جراحی نخاعی ایران (NSCIR-IR): یک مطالعه آزمایشی.

امکان سنجی و کیفیت داده‌های ثبت ملی جراحی نخاعی ایران (NSCIR-IR): یک مطالعه آزمایشی.

Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (NSCIR-IR): A Pilot Study.

Naghdi K1, Azadmanjir Z2, Saadat S1, Abedi A1, Koohi Habibi S2, Derakhshan P1, Safdarian M1, Abdollah Zadegan S1, Amirjamshidi A3, Sharif-Alhoseini M1, Arab Kheradmand J4, Mohammadzadeh M5, Zendehdel K6, Khazaeipour Z7, Hashemi SMR8, Saberi H7, Karimi Yarandi K3, Ketabchi SE3, Yousefzadeh-Chabok S9, Heidari H9, Sotodeh A10, Pestei K11, Ghodsi Z1, Sadeghian F1, Noonan V12, Benzel EC13, Oreilly G14, Chapman J15, Hagen EM16, Fehlings MG17, Vaccaro AR18, Faghih Jooybari M19, Zarei MR1, Zafarghandi MR1, Salamati P1, Nezareh S20, Khormali M1, Sadeghi-Naini M1, Jazayeri SB1, Aarabi B21, Rahimi-Movaghar V1.

Author information
1
Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran.
2
Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran.
3
Department of Neurosurgery, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran.
4
Ahya Neuroscience Research Center, Tehran, Iran.
5
Trauma Research Center, Kashan University of Medical Sciences, Kashan, Iran.
6
Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran.
7
Brain and Spinal Injuries Research Center (BASIR), Imam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran.
8
Department of Neurosurgery, Firoozgar General Hospital, Iran University of Medical Science, Tehran, Iran.
9
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran.
10
Poursina Hospital, Guilan University of Medical Sciences, Rasht, Iran.
11
Department of Anesthesiology, Tehran University of Medical Sciences, Tehran, Iran.
12
Rick Hansen Institute, University of British Columbia, Vancouver, British Columbia, Canada.
13
Cleveland Clinic Foundation, Department of Neurosurgery, Cleveland, Ohio, United States of America.
14
Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
15
Swedish Neuroscience Institute, Swedish Medical Center, Seattle, Washington, USA.
16
Autonomic Unit, National Hospital for Neurology and Neurosurgery, Queen Square London, UK; Institute of Neurology, University College London, UK; Department of Neurology, Regional Hospital of Viborg, Viborg, Denmark; Department of Clinical Medicine Aarhus University, Aarhus, Denmark.
17
Toronto Western Hospital, University Health Network, Toronto, Ontario, Canada.
18
Department of Orthopaedic Surgery, the Rothman Institute, Thomas Jefferson University, Philadelphia, USA.
19
Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran.
20
Cloudware Company, Ltd, Tehran, Iran.
21
Department of Neurosurgery, University of Maryland School of Medicine, Baltimore, Maryland, USA.

Abstract

BACKGROUND:
Spinal cord injury (SCI) is one of the most disabling consequences of trauma with unparalleled economic, social, and personal burden. Any attempt aimed at improving quality of care should be based on comprehensive and reliable data. This pilot investigation studied the feasibility of implementing the National Spinal Cord and Column Injury Registry of Iran (NSCIR-IR) and scrutinized the quality of the registered data.

METHODS:
From October 2015 to May 2016, over an 8-month period, 65 eligible trauma patients who were admitted to hospitals in three academic centers in mainland Iran were included in this pilot study. Certified registered nurses and neurosurgeons were in charge of data collection, quality verification, and registration.

RESULTS:
Sixty-five patients with vertebral column fracture dislocations were registered in the study, of whom 14 (21.5%) patients had evidence of SCI. Mechanisms of injury included mechanical falls in 30 patients (46.2%) and motor vehicle accidents in 29 (44.6%). The case identification rate i.e. clinical and radiographic confirmation of spine and SCI, ranged from 10.0% to 88.9% in different registry centers. The completion rate of all data items was 100%, except for five data elements in patients who could not provide clinical information because of their medical status. Consistency i.e. identification of the same elements by all the registrars, was 100% and accuracy of identification of the same pathology ranged from 66.6% to 100%.

CONCLUSIONS:
Our pilot study showed both the feasibility and acceptable data quality of the NSCIR-IR. However, effective and successful implementation of NSCIR-IR data use requires some modifications such as presence of a dedicated registrar in each center, verification of data by a neurosurgeon, and continuous assessment of patients' neurological status and complications.


 نوشته شده توسط : Admin      در تاريخ : 1396/06/13        ساعت : 21:23     

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